Wife has been struggling with vestibular migraines for about 20 years. It really came to a head about 5 years ago, and we spent the following three years seeing specialist after specialist and trying around a dozen different medications. During this time she had daily flare-ups and missed a lot of work and spent most days in bed or on the couch.
What ended up working in the end? We finally got into Mayo, and they suggested an SSRI (at a fairly high dose). She also figured out that she has a few food triggers (yogurt and freshly baked bread are 2 bad ones). She also discovered she has double vision, and now wears prism glasses. We think the combination of double vision and whatever brain chemistry imbalance she had was "overloading" her vision and vestibular systems, and she would basically just shut down. Treating both of those seems to have (mostly) alleviated things for her.
I completely understand what you've gone though and how frustrating it is, especially given the very vague criteria for diagnosing and treating vestibular migraine.
What ended up working in the end? We finally got into Mayo, and they suggested an SSRI (at a fairly high dose). She also figured out that she has a few food triggers (yogurt and freshly baked bread are 2 bad ones). She also discovered she has double vision, and now wears prism glasses. We think the combination of double vision and whatever brain chemistry imbalance she had was "overloading" her vision and vestibular systems, and she would basically just shut down. Treating both of those seems to have (mostly) alleviated things for her.
I completely understand what you've gone though and how frustrating it is, especially given the very vague criteria for diagnosing and treating vestibular migraine.